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"I will not forget your compassion and caring. Because you had gone
through it with many other families, you knew of our pain. You were
always ready to help. I remember, towards the end, I called you to
ask how much longer would she have to live. You came to the house,
evaluated Brenda's condition, and helped me prepare for her death."
-Russ Cisek, spouse of ALS patient
"Literature on ALS is plentiful, but
when changes overtake your lifelong partner, your whole life changes,
too. There's little time to read, and specific advice about how to
handle the situation -- physically, emotionally, and spiritually
-- can be hard to find. When I met Ron Hoffman at a support group,
he seemed like someone who could help. I grossly underestimated just
how much. For questions of any nature, he helps me find answers.
He brings equipment to our house and shows us how to use it. He encourages
us, in the most compassionate way, to confront the challenges we
face now -- practical and spiritual -- and prepare for those to come.
Both my husband and I feel grateful and indebted to him for accompanying
us on this journey."
-Marlene Ellin, spouse of ALS patient
"I remember a conversation that I had
with Ron when I was in one of my down points as a caregiver, [caring for
my husband Ed had me] feeling overwhelmed, tired, angry, resentful, you
name it! Ron had called to check in and asked me how I was. He really
opens his heart and listens! Ed sometimes has a difficult time listening
to others talk about the illness but with Ron, Ed listens."
-Wendy Smith, spouse of ALS patient
"Your support and aid through Fran's
illness will never be forgotten. The inexsufflator was a Godsend
and the shower chair also. The financial aid, the kindness, and just
being there for us were so appreciated."
-Mona Tighe, spouse of ALS patient, July, 2001
"Your encouragement and helpful hints
boosted Bill's spirits and the chair will provide him the freedom
and comfort of sitting with friends and family on a regular basis."
-Bill and Mary Palladino, ALS patient and his spouse
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