"Ron is very good at networking within the sphere of the needs of families affected by ALS.  He understands that these needs, whether for equipment, medical care, advice or answers to questions, can’t be put on hold.  If he can address your or your families’ needs himself he does so immediately.  If you have a need he can’t provide for he will get you in touch with someone who can, right away, then he will follow up with you about whether your need has been met…He has made my family’s ordeal with this thing called ALS more bearable."
– Seth Carey, ALS patient

"Let's talk about how a shower feels after more than a year. Wonderful! Beautiful! Refreshing! It's amazing!"
Kit Nasuti, ALS patient and recipient of shower chair

"Many fine people are searching for the silver bullet that will cure ALS, but Ron Hoffman is one of the few who puts his considerable effort where I need it most - helping me deal with the myriad real world issues and needs that are crucial to the quality of my life. I'm so grateful for his acts of kindness and the friendship he brings when he visits my family and me."
-Rick Guttenberg, ALS patient

"Over the past few years of my ALS "career" Compassionate Care ALS has helped me significantly on several occasions. Thank you for providing the "Miracle Mobile" as I like to call the wheelchair van! A month ago a very dear lifelong friend lost her brother to illness, and thanks to your loaning me the van I was able to attend the wake to personally express my support and sympathy. That meant more to both of us than you will ever know."
-Linda E. Burge, ALS patient

"It completely undermines the reality that is your life. The dreams that you have pretty much evaporate."
-Jim Tobey, ALS patient, from "Life So Precious"

"I don't believe God wants me alive on a machine. When it's time, it's his time."
-Steve Reding, ALS patient, from "Life So Precious"

"The use of the remarkable automatic page turner took but a few moments of practice to learn how to use it. It has reopened a wonderful world that became closed to me when I lost the use of my hands."
-Fred Andelman, ALS patient, March 19, 2000

"SUNDAY WAS GLORIOUS -- IN EVERY WAY !  YOU DID A SUPER JOB ! How did you manage to get perfect weather also?  The Hall was filled with excitement, happiness and good will.  It was lovely to meet again many good folks from years gone-by, and then, meet new people, too.  Ed, Sally and I met Dorraine & Dick -- had a great chat. THANKS FOR EVERYTHING,   THE CUSHION IS JUST WHAT I NEEDED."
-Barbara and Ed, August 2007

"You have no idea how much I appreciate your quick response to my husband’s need.  It is so difficult to find such dedication, I have found.  We are going through a passage we never dreamed of and finding support has been very compelling.  Please know you are in my thoughts and when I think of you and what you are doing, I smile.  I used to smile a great deal but not anymore. "
- Marily Blumsack, E. Falmouth, June 2007

"Thank you for being my brother Bob’s “angel” through such a difficult time.  Your being there for him was also being there for me.  You are a true friend.  Thank you so much, Bob’s sister, Jane." 
-Jane Kessler, June 2007

"I would first like to thank you for such a wonderful meeting today.  I think it is the first time since my Mom’s diagnosis that I actually feel comfortable enough to contact someone, you."
-Marianne June 2007

"I’m in a cottage on a lake, completely secluded, and very much alone with my thoughts.  It’s time to stop leaning on my friends, family, and “keep busy activities.”  It’s the dreaded end of the road where I must face head on whatever is inside of me, whether it be loneliness, regrets, joy, emptiness, strength, weakness, all of the above, none of the above, and so much more.  How’s that for a run on sentence?  I suppose it’s my version of your wilderness experience.

Some of my thoughts just turned to you, and I want you to know that you were the proverbial calm amidst the storm.  You offered me things that no one else did (including doctors, can you believe it?  Yes.  I know you can.)  I’ll always be grateful, and remember your role in the most tragically important experience of my life.  

Thank you for emphasizing “no one has to suffer” and giving us some idea as to what would happen in the end. 

Thank you for telling me to get a lock of his hair—something that wouldn’t have occurred to me, and I’m so glad to have it. 

Thank you for sitting in the hall and talking to my boys while their dad lay dying in the room nearby.

Thank you for being sensitive to the fact that I needed time alone with Brian.

Thank you for telling me…"

-JS  August 2004

"Just a note to say hi and thank you for your part in making last weekendsuch a refreshing drink of cool water for me. I hope it's not too long before our paths cross again."
-JC-Feb 2008

"The ramp arrived yesterday and we installed it today - ah, freedom! Thank you, once again, for your generosity and thoughtfulness. I can't  begin to tell you how much your continued help means to me and my family.  I'm looking forward to being closer to you in CT."
-DR-January 2008

"I wanted to open communication and also thank you for all the items you brought with you that WORK. I just went out and utilized the bar for the car and it is fabulous.  We really enjoyed the time spent with you and want you to understand how important to us that being with someone who truly understands this disease is. Your experiences are awesome! Anyway, we will be in touch, now that you have my address."
-DV February 2008

"It was such a joy to meet you yesterday.  I have such a peaceful feeling about you and your mission.  I’m blessed to add you and CCALS to my list of gifts in my life."
- DD October 2007