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"When we have people with ALS on our
caseload, you just know how overwhelming it is on every level, psychologically,
physically, for not only patients but also family members and caregivers.
Compassionate Care ALS truly is compassionate care: it picks up the
missing pieces, the small details that make life manageable in an
unmanageable situation." "Compassionate Care ALS is an organization
that draws its wisdom from the heart and soul of the conscious
living and dying process as a normal and dignified life experience. They support the
individuals, families, and friends who are engaged in these ultimate
passages by witnessing, loving, and following the family’s
desires first and foremost and serving them from their own experiences
and learning over the years." "For all the work that appears invisible,
I thank you." "Research strongly suggests that the immune system
is diminished by the absence of a social support system. The personalized
care and unique services of Compassionate Care ALS demonstrate that
people can be healed without necessarily being cured." "I have worked with Compassionate Care
for the past several years and have watched the organization grow
and develop effective programs to support not just patients, but
also caregivers, family members, and health care professionals…I
would strongly encourage other hospice directors to invite Compassionate
Care to lead a staff training to learn more about ALS and the skills
and strategies for providing sensitive personal care for anyone facing
end of life. The
training includes helpful insights into self care for both family
caregivers and health care professionals." "Ron Hoffman is well known on Cape Cod for his expertise
and passion for those suffering from ALS disease. He is a tireless
advocate for services for his clients and an incredible resource for families
who are caring for loved ones with the disease." "Thank you for making time to provide education on ALS to
our staff including nurses, social workers, home health aides and
volunteers. We found your presentation informative and powerful." "Compassionate Care ALS has been invaluable
in assisting ALS patients with daily living and improving their quality
of life. The van service is a great asset to our ALS community in
that it allows patients with ALS to maintain a more active social
life and on occasion get to critically important medical appointments." "At times [my client (a caregiver of
a terminally ill patient)] has needed much more in terms of “time
away”,
particularly attention to her body (massage, yoga, etc.) for its
stress, without causing a financial strain. Since there is no such
place of respite, I applaud Compassionate Care ALS for its innovation
and the much-needed resource they provide to caregivers." |
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